She recently made the huge donation to the University of Colorado Anschutz Medical Campus, where Dr. Amanda Piquet is treating her for the rare condition.
According to Amanda, she has developed a great relationship with Celine Dion since she was diagnosed with the disease, and she is currently on a good treatment pathway.
Piquet added that there are no FDA-approved therapies for the disease, so immune and symptomatic therapies are currently being employed to manage it.
Dr Piquet, director of Autoimmune Neurology at CU Anschutz has this to say, “I am just incredibly honoured to receive this recognition to move the field forward with this research.
Stiff person syndrome is a progressive autoimmune neurological disorder that is characterized by two cardinal features β muscle spasms and stiffness.
Celine happened to find us, and it was a great relationship, and we worked really hard with her managing those symptoms, getting her on a good treatment pathway.
There are no FDA-approved therapies for this disease. We often use immune therapies, and symptomatic therapies to manage the disease.
We will also do things like physical therapy, massage therapy, and in Celine’s case vocal therapy to help manage the symptoms.”
WOW.
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